Showing posts with label Perspective. Show all posts
Showing posts with label Perspective. Show all posts

Sunday, August 23, 2015

Two Realizations as a Result of the Women of Faith Conference this Past Weekend

I went to the Women of Faith conference this weekend in Philly. It was awesome and amazing and sad. Sad because this is the last year they are having the conference as they have been doing it, with all the amazing speakers that have been a part of it.

It is always awesome and usually amazing. Every time I walk in there and sit down I take about 20 minutes to relax, to adjust to being there. Then I get this deep feeling inside that tells me, "Yes!! This is just what I needed!!"

[Two of my beautiful sisters and I at WOF this weekend (I'm on the right)]

I don't know why it continues to surprise me that there are still things that bowl me over about God, how his daughters share about God, and how we and life work, but it does. It often does. It doesn't happen with every speaker, but usually at least one or two will say something that just really sticks with me. Sometimes it's just a spark of an idea that a speaker shared which causes me to come through a lightning speed thought process to some form of enlightenment. This year it was the latter.

So, this year I realized two things about myself. And these two things are huge. So huge that I'm not sure why I never realized this about myself before now. Perhaps God needed me to get to the place where I am now to know how to be able to handle it. Maybe I will never know why it took this long. But, here I am.

When I was a girl I always wanted my superpower to be flying. I thought it would be the most awesome thing in the world! I dreamed about flying often. Sometimes in the daytime, but mostly at night. In my dreams I would soar anywhere and be able to feel the wind rushing by me. I loved it because I felt free and safe and happy. If any bad guys came into my dreams I just flew up and was safe away from them.


I've mentioned some of the issues I've had in previous posts (Feel free to read the back posts). Yet, I have really only scratched the surface and gone down a couple levels. Here, I'm going to share more that goes down into the core of who I have been and am now.

So, back to what I realized this weekend.

The first thing I realized this weekend is that my superpower isn't flying.

It's been a long time since I've been able have dreams at night that I can remember when I wake up (I can count the number on one hand for the same number of years), let alone have a dream of flying. But, even still...

No, my superpower isn't flying.

My super power is running way.


I am amazing at it. No, I excel at it! I can run so fast and far that no one can catch me. I leave them in the dust wondering what just happened.

Those that know me by now might be raising their eyebrows or laughing because I have always hated running. With a passion! But, I'm not talking about physically running away.

In regards to my fight or flight response, when it comes to people I love being hurt or mistreated in some way I will have an initial reaction of fight.

But in every other way, and especially when it comes to things about me, my immediate internal response is flight. Swiftly. Silently. Immediately.

It isn't always visible on the outside. On the outside I might seem fine. But inside I shut down. I run away inside. I run so far and fast into the core of myself that my heart can ache with the emptiness I'm leaving behind.

This affects every part of my life. It affects my relationships with my boys. It affects my relationship with my parents. It affects my relationship with my extended family. It affects my relationships with my friends. And it really affects my relationship with my husband (bet you thought I forgot him!).

Yes, running away is my super power.

But, if there is anything I excel at more than running away, it's hiding.


I am a champion hider. Always have been. I hide so well sometimes when my son Reilly is finding me that I have to give a couple clues before he figures out where I am. If people found me quickly it was because I wanted them to find me sooner.

When I hide inside it isn't a quick little jaunt. It can be days. It's more often weeks. Sometimes it's been months. And people never find me.

This is why I've been pretty silent this summer. I've been running and hiding inside.

You might make the correlation that if running inside affected my relationships that much, then hiding affects my relationships even more. And it does. With the only exception being that when things are good with me and Steve (which is most of the time) the place I feel the safest and best is in the arms of my husband. It's my favorite spot. If I had my way I'd never leave that spot, but life does insist on moving forward. And it wouldn't end up being good for me anyway because I would still be hiding.


That's how I have responded to much of life ever since I was a little girl. If you run away inside then it won't hurt as much. If you run away inside you won't feel as much. If you run away inside then you can pretend things are different than they really are. If you hide then no one can find you. If you hide then you are safe.

I'm not going to share all of how I learned to handle life this way and how it got to that point. Some of it is part of other stories that aren't mine to tell, and most of them would just take a long while to explain.

However, I can tell you how many times that this superpower backfired. Almost every time.

I still hurt, I just let myself bleed inside while I tried to ignore it. I still felt everything, but I fooled myself into thinking my emotions were gone or didn't matter. Things were never different than they really are and reality always crashed in. People may not have found me, but they also didn't know me and I desperately want to be known and accepted for me. And any illusion of safety I had was a lie.

They were ALL lies.


But the thing with lies is that they are sneaky. They often start little but gradually grow into something big.

I've been trying to be really honest with myself and others for the past 13 or so years ever since I realized how hurtful lies could be (another long story). I have thought I've been doing pretty well at it. So, you can imagine my shock and surprise at realizing that I've been telling myself big huge fat lies for most of my life and didn't recognize it!

So, the first thing I realized this weekend was that my super power isn't what I'd hoped it was, and I've been telling myself big fat lies for years.

The other thing I realized this weekend is that I've pretty much just been waiting for life to happen.

I have Fibromyalgia and chronic fatigue. I have pain and achyness all the time (though better more recently which I'll share in another post soon). I have difficulty with normal every day things that other people hardly blink an eye at.

I am an introvert. On a scale of extroversion and introversion, with extroversion being 0 and the most introverted person ever being 10, I'm around 8.5. I might even be able to argue for 9.



I have a really active extroverted 5 and a half year old boy and a mellow but curious 6 month old boy. Most of the little energy I have is drained out of me just with taking care of them. I'm exhausted every second of the day in a deep-down-I'm-never-going-to-not-be-tired kind of way.

Since I can do little else, especially not do much of any work to earn money, I feel like I am just in a holding pattern of waiting.

I'm waiting to feel better. I'm waiting for my boys to grow older. I'm waiting to figure out more of what I want to do with my life. I'm waiting to be in a good mental space. I'm waiting to be in a good relational place. I'm just waiting and waiting and waiting.

I decided this weekend that I'm done with waiting.
I decided this weekend that I don't want to run away anymore.
I decided this weekend that I don't want to hide anymore.

I'm still trying to figure out the how. It might take a while.
Maybe I can get a new superpower some day.

Maybe some day I can fly.





Monday, June 1, 2015

Strength From Within, Part 4 - Recalibrating My Thinking

This is the fourth post in my series on Strength From Within.

In the first post I talk about how Dr. Oz stated that each person's body changes every 7 years on a cellular level, leaving each of us as an entirely different person. I talk about how I struggled in my different body with Fibromyalgia and what I now had to do when faced with my body being different- learn how to deal with the changes and discover myself all over again.

In the second post I talk about having to grieve my losses, letting myself feel all the negative emotions, and let the losses go so that my heart could have emotional freedom and the space to discover myself.

In the third post I describe a process I went through in how I decided to do something scary and face my fears, not letting them take over my life. This took courage, but it changed my life and let me teach my son Reilly about being brave like his name describes.



In this post I will walk through some of how I have had to recalibrate my thinking. I talk about some of this already in my post on the New Normal. I described how I struggled with coming to terms in having Fibro because of it being nebulous, relatively unknown, and invisible.

Some days were ok, and some days I was irritable and depressed. I go on to talk about an attitude adjustment I've had to make in my thinking about Fibro as I had to think of where I am at now as the new normal, and learn to be ok with it.

After living with that attitude adjustment for a while I realized that I still had some thought adjustments to make, and came to a startling conclusion that was almost a revelation.


Have you ever had your brain tell you something, and you just ignored it and kept going about your day? Or, after your brain told you something, you said, "No way, Brain!!" and rejected that thought? Or, it tells you something and you laugh about it, thinking your brain is just being funny? And your brain says, "No, I'm really serious!"

Or, it could just be me...

Anyway, what my brain was telling me now was this:
Rather than focusing so much on what I had lost through Fibromyalgia, I needed to see what I had gained. 


Wait, what??!?!?

Surely my brain was just being funny, right?!?

Nope... not being funny. 

So... here I am with this thing my brain is telling me. I didn't really want to think about it. However, while I really just want to ignore it (or reject it outright), I let it sit there. I realize that I already know my brain has a point.

All this time I've been thinking about all the negatives of Fibromyalgia. And when you focus on the negatives a lot, well, it's kind of a negative way to live. I also have been completely ignoring anything good that I might have gained (aka, looking for the silver lining).


So, I start thinking about it. And thinking. And more thinking (I think a lot, if you haven't picked that up by now!).

I think about how I was before I struggled with Fibromyalgia, and how I am now.

I have far more compassion now. Not that I didn't have any before, but I just didn't let myself think all that much about how difficult it must be for those that really struggled with illnesses, conditions, and diseases. Those that struggled with deeper emotions and inner conflict didn't move me deeply, I just was sad for them and that they were going through a difficult time. Now, it gives me pause. Now, I know how hard these kinds of things can be and hope they are able to work through it and get help if they need it. Now, I have a welling up of emotions when I think about everything they are going through. Compassion is part of the underlying reason I started this blog.


My priorities have shifted. Before, I did whatever I felt like doing and needed doing. Now I only have energy for a certain number of things throughout the day, so I do what I can to balance the needs of my family with being able to get enough rest for myself. I can only do one or two regular activities (like community groups or bible studies) a week so I need to make sure they are the best things for me to do each semester. This has simplified my life and helped me to focus on what's really important.
 
I think about the things I thought about before, and what I think about now. Before I looked externally to shape my internal world. Now I look internally to shape my external world. Before I was concerned about what other people would think about me. Now I'm more concerned with doing/saying what I think/believe is right.


I think about what I did before and what I do now. Before I had the energy to have everything clean the way I wanted it, organized, and have everything exactly where I wanted it. When I was a teen it would drive me crazy anytime someone changed something of mine, or got into my things. In college it would bug me anytime someone wanted to borrow something because I had my things exactly the way I wanted them (I still did it, but I didn't like it).

Now I don't have the energy to get everything clean and organized, or have the energy to care that it isn't done. I know if I had kids without having had to make shifts in my priorities and in what I do, I would have driven them crazy with trying to meet my idealist perfectionism. Now, I do what I have to do but I'm more focused on spending time with my husband and boys, and taking care of myself, rather than driving myself (and everyone else) crazy trying to get everything done the way I would rather have it.


This only scratches the surface of the ways my thinking has had to be recalibrated. It took some time in doing this but it was worth it. I now know I'm personally in a much better place as a result of having Fibromyalgia for these reasons I mention and more.

My brain really had something there when it told me I needed to change how I was thinking.

It's possible it wasn't just my brain but God speaking to me in a way I would hear it. Either way, recalibrating my thinking has helped me enormously! There are other shifts in how I've been thinking about things that I've realized and discovered which I will relate in my next post.

Read Strength From Within, Part 5: Reaffirming My Faith

Sunday, May 24, 2015

Strength From Within, Part 1 - New Body, New Self

I once heard Dr. Oz give a commencement address. He was interesting to listen to and very engaging. I have a few vague ideas as to what else he said during the address (I was distracted trying to find a particular graduate amidst all the others!), but one section was very clear. He stated that everyone's cellular structure changes every seven years.

[Doesn't this look like a beautiful collection of various flowery and plant items? 
Nope! These are some of the cells in your body on a microscopic level!]

So, every seven years you are an entirely new person with new taste buds (ever find yourself suddenly liking or disliking how something tasted that you hadn't before?), new lungs, new heart, new eyes, and new ears, among the rest of you. There are some aspects about this that I'm not sure how it works, such as those needing transplants. However, as he's a widely renowned and respected doctor (and I'm not), I'm willing to trust he knows what he's talking about. :) Perhaps, rather than using the word new we should use the word different. We have an entirely different body.

During my teen years I had pretty bad asthma. Shortly after I went away to college, though, it went away enough where I could go places without feeling like leaving my inhaler in my room was a risk. I knew my body was different, but I didn't know why! This was my 21st year, though, so perhaps I now have an answer for that!

My mental, emotional, and physical states were also different than they had been. I thought about things differently, felt things a little differently, and felt physically better than I had in years (I have had back pain since my teen years but it wasn't as bad around this time and stayed mild until my Fibro flared up). So, you would think I would be used to having a body that changed. However, these are relatively normal life changes.


In my Fibro Story post I wrote, "There is nothing worse than waking up one day feeling awful and, as time goes on, realizing that your body has betrayed you. " And later, "I began feeling trapped in my body and wanted desperately to either have my body work properly and let me feel right, or to not be in my body anymore." I felt like my body was different and would never be the same again, but this wasn't a positive change. This was change in a really negative way.

I recently watched the Lord of the Rings trilogy again with my husband. At the end of the last movie Frodo asks this... "How do you pick up the threads of an old life? How do you go on... when in your heart you begin to understand... there is no going back? There are some things that time cannot mend... some hurts that go too deep... that have taken hold." He says this right before going on a trip that would redefine him and his place in the world as it now was- a new life.


I thought, How perfect is this?!? What came before is your old life. Everything that happened, that changed in your body, that changed in your heart and mind, has changed who you are... there is no going back. Frodo was physically, mentally, and emotionally damaged, and deeply changed in such a way that he would never be the same again. He had a hard time coming to terms with how these changes and damages affected him. It is the same for Fibromyalgia.

So, what do you do once you realize you now have a body that is so different than it had been before that there is no going back and everything will be different from now on? For me, I have had to learn how to deal with it, find strength from within me, and discover myself all over again.

Through the next several posts I will describe steps I've had to take, and areas in my life I've had to assess and change, in order to get to where I could start living my new life in my changed body rather than merely enduring and existing.


I warn you now that few of these steps are easier, and more of these steps are hard and scary. But, they have all been necessary to living a better life- one filled with hope and being able to enjoy my family and friends more than I've been able to in the past. It's not all sunflowers, puppies, and roses now (I still have all my symptoms of Fibro and still struggle with depression, after all! Besides, I'm allergic to puppies.), but that weight of depression, and the inner turmoil of Fibromyalgia has lessened through following these steps.

I won't phrase these steps in terms of what you can do, though you can certainly decide to follow these steps on your own. These are what I have had to do, and continue to do in some ways day after day. I hope you will be encouraged if you determine that you need to do some of these steps yourself!

Read Strength From Within, Part 2: Grieving My Losses

Saturday, May 9, 2015

Holding Onto Hope- Combating Depression and Fatigue

If you haven't read my first post on depression yet I hope you will read it first. I talk about zombies in it, so really, why wouldn't you want to read it?!?

Once you have, I want to tell you that if you suffer from depression and still want to try to live a full life, there are several steps I would urge you to take.

Step 1: Find Hope
In my previous post I stated that, "you want to believe there is hope for things to be different when you so often feel like there isn't any." When you suffer from depression, especially deep depression, hope is what you need to hold on to. You need a reason to hope. You need a reason to keep going even when you don't feel like it. Even when everything seems impossible, everything feels like blah blank boring empty nothingness, you think you can't possibly go another day the way you are...ness. You need to find something, or several somethings that give you a reason to get up day after day, to resist giving into the blahness, to continue to form and maintain relationships even if you keep thinking there isn't any point. You need a reason.

Allie's reason was kind of nebulous- she was able to laugh hysterically at something small (a piece of corn sitting all alone under the fridge), so maybe everything isn't hopeless. However, when everything seems hopeless, when you have no reason to keep going... A reason, however nebulous, is enough for a while.

 
After a long while I realized I had three reasons to hope, and things I hold onto to maintain hope: My God, my husband, and my child (now children). The more reasons you have, the more motivation you have for making yourself do things that seem impossible when you are lying in bed thinking everything seems too difficult.

I can't tell you how many days I woke up lying in bed thinking, "Why am I awake? Why should I even get out of bed? Why should I even care about getting up?" Once my first son was born, the answer always became, "Because Reilly needs me. I love him. I'm his mom and I need to take care of him because there isn't anyone else to do it when Steve is at work." Reilly gave me reasons to get out of bed, and often I got smiles which made a little pocket of happy in my day filled with zombie like foggy thinking.

Steve gave me reasons to care about other aspects of life and drew me more into being around other people, whether I wanted to or not. I wanted to because I wanted to see people, and to be and feel normal. However, it often seemed like a lot of effort and energy expended so I wasn't always sure I wanted to. Afterwards, I was always glad I did. Classic introversion made a lot worse with depression!

Steve, himself, is an amazing man, loves me unconditionally, and has often made me laugh or smile when I wasn't expecting it. At some point there will be a post all devoted to him as there are so many ways a spouse can help or hurt someone going through a chronic condition.

[Steve, Reilly, and I taken a few years ago by our friend

My God is the underlying foundation beneath everything. I seriously think He's the reason I'm still able to show love when my emotions feel so much like nothing. He's the reason I push myself to care about and for Reilly and Steve, now Connor, and my other relationships when I could so easily just not care and let myself be isolated. He's the reason I even want to have hope, because life without God so easily seems hopeless. Holding onto my faith hasn't been easy, as I'll share in a later post, but it has been completely worth it.

If you don't believe in God, I would ask you to consider the reasons that keep you from it. I wouldn't be surprised if it had little to do with God and everything to do with people that gave you a reason to resist believing in Him. However, whether you believe in God or not, I urge you to find some reason, any reason, to have hope and hold onto it day after day.

As you go through each day find little reasons, little signs, that there is a reason for hope. It can be as little as a flower or sunset, and as big as someone showing you love in some way. Each person will have different things that give them hope throughout their day. I will tell you, though, that this can be difficult as it's easy to just ignore everything that could be a sign of hope as you continue in your depression. Still, please try. The more you do it, the easier it gets.


Step 2- Find Ways to Ease Your Symptoms
Whether it's medication, supplements, exercise, relationships, dietary adjustments, or some form of meditation/spirituality, it is really important to find ways that help ease your symptoms. I won't list all the possible things of each you can do in this post as you can easily do a Google search and come up with a ton of information- although I may go into some of them in more detail later. I can tell you that the more you can do, the more it will help.

However, what works for some doesn't always work for others. Also, because there is a ton of information available, it can also be overwhelming to figure out where to start. Where I would start is with something that seems manageable that could help a lot- like taking a daily vitamin if you currently don't do that. A vitamin is such a little thing but I always feel better when I've taken them and always feel worse if I've skipped a few days. I don't always recognize it in the moment, but after I've started feeling bad I look back and realize I forgot to take them.

Another manageable thing is to just sit outside in the sun for 15-20 minutes every day with no sunscreen. Unless you have extremely sensitive skin you shouldn't burn during that amount of time. The reason you want to skip the sunscreen is that while sunscreen blocks UV rays, it also blocks the rays that carry vitamin D. Vitamin D can help your body feel better in general and most people are deficient. So, if you want to gain Vitamin D skip the sunscreen just for a little while.


A seminar I listened to said you can get all the Vitamin D you need for a day by being naked in the sun just for 5 minutes with no sunscreen. Now, I don't recommend that- don't want to scandalize the neighbors or cause issues with little kids running around (though if you have privacy areas, what you do in your home is your business)! However, with summer approaching, unless you are so deep into depression you can't get out of bed (in that case perhaps open the window and shades for a while?), it shouldn't be too difficult to sit in the sun with shorts and a t-shirt for even 10 minutes while you read or play games on your phone. Well, at least that's probably what I'd be doing (being honest)!

Step 3- Avoid Pity Parties
When you are in deep depression, and especially in that spiral of depression, it is soooo easy to throw yourself pity parties. Then, when you do get together with people you tend to invite them to your pity parties too. I could tell you some stories but they would just depress you. Just suffice it to say, Yeah... so easy!

Unfortunately, when your depression has a piece of it based on mood, internal and external factors, this just feeds your depression and makes it worse. It can sometimes feel like it's helping. After all, misery loves company! But, that's the thing... company in misery just makes more misery. It doesn't really help at all.


What helps with this is to replace pity parties with thinking something positive, even if it's little. When you realize you are in that place where you are entertaining your pity party, find one of your hopes and just embrace it. Immerse yourself in it, marinate in it, (insert favorite action verb that basically means to surround yourself with it here). Spend time/talk with that person, do that thing, look at that piece of beauty. Whatever your hope may be, just start feeling, thinking, and doing everything about that hope that you can so it blocks the feelings, thoughts, and actions of your pity party. This can take a while to get to where it's an auto shift in thinking, but you can do it.

Every time you shift your pity party to your hope it helps that much more. Any change takes a while to become automatic. First, it's completely hindsight- so it could be days in your pity party before you remember, and that's ok. The more you do it the better and sooner it will get. Then it becomes the same day, then hours, and minutes, until finally it's a pity party mode first with a quick shift to hope in almost the same instant. But, all this is a process. So, it will take a while. Give yourself grace in the meantime and don't give up on it.

[If you are a Doctor Who fan (because who wouldn't want to be!?!), you will immediately recognize 
David Tennant who plays the Tenth Doctor on the show. David Tennant did an excellent job at portraying 
the dichotomy of a deeply depressed individual who still managed to often find happy things in life 
and reasons to maintain hope, sometimes after indulging in a pity party. He's a favorite 
Doctor and actor for that alone.]
 
Step 4- Adjust Your Coping Mechanisms
A coping mechanism is anything you do to adjust to the effects of stress in the hopes of reducing the impact stress has on you. Coping mechanisms are most basically broken down into fight (e.g. learn more, attack the problem, seek help, blame others) and flight (e.g. avoidance, denial, distancing, humor).

Some of these are positive, and some not so positive. Learning more, attacking the problem, and seeking help are all positive coping mechanisms. Blaming others, denial, and avoidance (anything you use to keep from dealing with stress, such as substances, affairs, or overindulging in hobbies) are negative ones. You will notice I didn't mention humor as a positive thing even though you would think it was? I also didn't mention distancing in the two categories. Well, with these two it's not so cut and dried (ever wonder how we got sayings like that one?!?).


Sometimes distancing can help because it gives you space to look at stressors and the situation more objectively so you can handle it. However, you don't want to stay with that distance maintained. That is when it becomes a negative, and more like avoidance. At some point you will need to deal with the stress rather than keep it at arm's length. Humor is a form of distancing. It can be a stress reliever, but if you use it too often it can become annoying, unhelpful, and more stressful.

My go to coping mechanism is avoidance, and most often is with books. I tend to read a lot. No, I really mean a lot. Seriously, a LOT. If I had a physical book for each book I've read, including the multiple times I've read them, I think my entire house would be lined with books.


If you are a book lover of any kind this could seem like a dream come true! The only problem with my coping mechanism of reading is that I often read fiction... and when I read I tend to completely immerse myself in the story... so much that if it's a good book I can view what's happening in my head like a movie or as if I'm there. Book lovers won't see a whole lot of problem with this (I can totally hear you saying, "Of course not! Why is this a problem!?!").

Well, here's the problem... when I'm living immersed in the world of the current book I'm reading, I'm missing what is happening out here in the real world ("Well, yeah, that's half the point of reading!"). And, if I'm missing what is happening out here in the real world, while I am missing [read: avoiding] the stress, I'm also missing all the good stuff and memories that are happening with the people I love ("........*blink*.......But.....*blink*......").


Yeah, not a lot I can say back at that one...

Now, I'm not saying I don't read anymore. Far from it! I still have stress and have a hard time coping with stress sometimes. However, I try to limit it when I can. If that doesn't work during a high stress period, after a time I will have a book fast in which I don't read many books at all (I'm in one now and decided to start a blog- funny what can happen!). Sometimes this comes naturally after I've read all my favorite books again, and everything that I can find at the library, and am in a waiting spell for more books by my favorite authors to be published (sometimes with internal pouting... and lots of sighs...). However, usually I get to some sort of saturation point when I have gotten to a place where I've avoided for as long as I can mentally, emotionally, and physically take and just have to deal with the parts of life I've been avoiding.

So, how do you adjust your coping mechanisms? First, recognize the coping mechanisms you have in the list I mentioned above. If you are having trouble with figuring out your coping mechanisms, you are welcome to let me know and I will help you with this! Second, identify one or two coping mechanisms that you think would be good to do instead. Or, to do what I've mentioned, which is do what you can to keep it from taking over your life. With some things this will work. In other instances (substance abuse being a big one), you may need to abstain entirely and find another way to cope.

After these two things, you adjust similarly to the process I mentioned in the pity party section. It will take time, but you can adjust, you can do it, and it can become normal to have a positive coping mechanism that still lets you experience life in the midst of depression and stress. 


Hold onto Hope, even (especially!) when all you can feel right now is nothing. Feelings aren't facts and don't get to dictate your life. You can do it. Find your somethings to have hope and just hold on.



Monday, May 4, 2015

New Normal

I struggled for a number of years before I was diagnosed with Fibromyalgia. You can read about this journey here. After I was diagnosed and finally knew what was going on in my body, I still struggled to come to terms with it.

One reason is because Fibro is a lifelong condition. It's possible at some point those in the medical fields will figure out a cause or some way to treat the cause without just masking or treating the symptoms. But, until that point I will have this Fibro condition that won't go away.

Another reason is because Fibro is nebulous, relatively unknown, and invisible.

Invisible because people usually can't just look at you to tell you have it. There isn't a test you can take for it. You know how you feel but you still look the same as you always did to everyone else.


If the Fibro symptoms are relatively mild, you may also still seem the same to everyone. My symptoms have not been mild since my first son was born and since my second son was born in February of this year my symptoms have ramped up even more.

I knew it was likely my symptoms would get worse after child birth ever since I learned that physical trauma was a factor in developing Fibro symptoms. I decided it was worth it, and Connor definitely is!

[Actual picture of our son Connor James]

However, I don't think I will be able to have another child, in large part due to how much more debilitating another childbirth could be, as well as because it's all I can manage now to handle two kids. I don't think I would be able to manage a third. I have had to be very honest with myself through this process and have had to know where my limits are. This is definitely one.

Back to Fibro! It's relatively unknown- both as far as how to diagnose it, treat it, and cure it, as well as in the minds of the general population. Now, it is much better known than it was even 5 years ago. There have even been commercials promoting certain medications to treat it and more and more people have been diagnosed with it. However, compared to other illnesses and conditions, it can often be overlooked and misunderstood.

Fibro is nebulous. Yeah... People don't always know if they have Fibro the way they can with other conditions. You just slowly feel more exhausted, more depressed, and in more and more pain.


Once you are finally diagnosed (since there is no test for it there can be a long waiting period while the doctors run tests and tell you everything you don't have), it is still nebulous because there is no clear cut prescription, no definite list of things to avoid or do to change it. Some things work for most, a few things work for some, other things work for the rest. There are guidelines, suggestions, and possibilities, but you have to try them to see for yourself if they will actually work for you. And so- Nebulous.

So, perhaps you can see some of why I was struggling after learning that I definitely had Fibromyalgia. I was doing what I could to manage my symptoms but I was struggling a bit with my attitude. Some days I was fine, and some days I was... irritable and depressed.


I met with a dear friend for lunch who shared with me her grandmother's struggles with forgetting things and being less able to do things she was previously able to do. She would try to encourage her grandmother when this happened, so when something else was forgotten or not able to be done anymore, she would tell her grandmother, "It's alright. This is just the new normal," and helped her learn to live in the new normal.

This shift in perspective was really helpful and really applicable to having Fibromyalgia! It changes, often for the worse, and then will stay the same until something triggers another change, or gives you a flair up. So, thinking of Fibro this way was a big help!

It's amazing how much of a difference a shift in perspective can be for you. I felt like I could manage things, be less irritable, and practically buoyant compared to how I felt before. I could sit there, take a few breaths when I felt overwhelmed, and just remind myself that everything was ok. Everything didn't suddenly feel wonderful, but in the midst of exhaustion and depression I could still have a tiny piece of happy.


It has still been a struggle, but since that shift in perspective it has been easier. My faith has helped a lot too, which I will share in a later post.

Have you had to make any attitude adjustments?